Goals- 10 year cycle

• Capture data for  recipient and donor characteristics at various intervals in the life cycle of a transplant recipient and living donor :
• Listing time
• Transplant time
• Post-operative
• Discharge time
• First year quarterly follow-up
• Rest 9 years annual follow-up
• Capture immunosuppression regimen, complications and patient reported outcomes

Input components

• Application server and database
• Web app for application administration
• Web app for recipient/donor data entry
• Mobile app iOS (iPhone and iPad) data entry and data analytics
• Mobile app Android devices data entry and data analytics

Output components

• Web services for data selection/filtering and querying the registry database
• Reports and visual dashboards generation and distribution
• Infrastructure components – user management, session management, audit logs, e-mail component, mobile notification, reminder service, scheduled backup and archival

Levels of engagement – ILTR Lite

• Focus on data gathering with elementary reports/data access
• All centers
• Basic data – demographics, type of LT, outcome
• Ideally all users
• Access to basic demographic and other data published by ILTR

Full ILTR sign on

• MOU with centers -agreements to exchange data and cross-check common data
• ? Annual contribution
• The ILTR data will be available to members who’s center is regularly contributing complete data to the ILTR. 
• Participating centers will be cited in every publication from the registry

Input and output

• Data entry screens are simple to start with
• Need to be designed for extensibility to allow for changes in specific data points as the registry matures over time
• Data display screens will be fairly complex